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MyPAC (My Priorities in caring for children with Advanced Cancer) Study

We are conducting a research study at Yale School of Medicine to find ways to measure and improve the quality of healthcare children with cancer receive, particularly near the end of life. Specifically, we are developing quality measures, which help determine how well we provide healthcare and allow us to do better in caring for patients and families.

Before starting this research project, people involved in childhood cancer, including patients, parents, and healthcare professionals, were asked to talk about what they felt was most important for a healthcare team to focus on when a child with cancer is near the end of life. After gathering this information, a list was created of possible measures, or indicators, of high quality care.

Parents who have lost a child to cancer are now invited to help narrow this list of measures, based on what you feel is most important to take into consideration near the end of life. The goal of the MyPAC study is to focus our efforts on measuring what is most important to you, as we try to improve quality of care for children with advanced, or incurable, cancer.

Participation in the MyPAC study will involve completing a brief, confidential online survey which should take 10-15 minutes. Upon completion of the survey, you will receive a $25 gift card as a token of our appreciation.

If you are interested in the MyPAC study, please complete this brief eligibility survey. A member of our research team will be in touch with you shortly.

Thank you in advance for your contributions to this work. Please contact our team (PI: Dr. Prasanna Ananth) at MyPACstudy@yale.edu with any questions.