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The Field of Psycho-Oncology

November 29, 2021
  • 00:00Funding for Yale Cancer Answers is provided
  • 00:04by Smilow Cancer Hospital and AstraZeneca.
  • 00:08Welcome to Yale Cancer Answers with your
  • 00:10host doctor Anees Chagpar. Yale Cancer
  • 00:13Answers features the latest information
  • 00:14on cancer care by welcoming oncologists
  • 00:17and specialists who are in the forefront
  • 00:19of the battle to fight cancer. This week,
  • 00:22it's a conversation about Psycho-
  • 00:24Oncology with Doctor Jennifer Kilkus.
  • 00:26Dr Kilkus is an assistant professor of
  • 00:28psychiatry at the Yale School of Medicine,
  • 00:30where Dr Chagpar is a professor
  • 00:33of surgical oncology.
  • 00:35Maybe we can start off by you telling us a
  • 00:37little bit about yourself and what you do.
  • 00:40Sure, I am a clinical health psychologist.
  • 00:44I've been in practice since about
  • 00:462014 and primarily worked in large
  • 00:49health systems helping to improve
  • 00:51behavioral health and psychological
  • 00:53services for cancer patients.
  • 00:55So when we talk about
  • 00:58psychological services,
  • 01:00I think a lot of people get a bit
  • 01:03confused about all of the different
  • 01:05types of people that we talk about,
  • 01:07so we talk about social workers
  • 01:10we talk about psychologists,
  • 01:12psychiatrists.
  • 01:13Can you break it down for us and help
  • 01:16us to understand the differences and
  • 01:17the nuances between all of those?
  • 01:20Absolutely, and that's
  • 01:21a great point.
  • 01:23I often have to explain to people
  • 01:25what's different from what I do versus
  • 01:27what a psychiatrist does versus what
  • 01:29a clinical social worker does.
  • 01:30So a psychologist is someone with
  • 01:33a doctoral degree
  • 01:35in psychology.
  • 01:38What I tell people is I went to school for a very
  • 01:40long time to help learn strategies
  • 01:42and tools to assist people in
  • 01:44managing their emotional and their
  • 01:46physical symptoms more effectively.
  • 01:48I don't prescribe medication,
  • 01:50so that's a big difference between what
  • 01:52I do versus what a psychiatrist does,
  • 01:55and a psychologist can do
  • 01:57many different things.
  • 01:58Our degree is pretty versatile,
  • 02:00but what I use my degree to do is to focus
  • 02:03on intervention therapy.
  • 02:06I mainly provide therapy
  • 02:09services for cancer patients using
  • 02:11my degree and a social worker is pretty
  • 02:13similar as far as what they do.
  • 02:16They also have a lot of variability
  • 02:19in what they can do with their degree.
  • 02:21Clinical social workers may provide
  • 02:23psychotherapy services as well.
  • 02:25They may also,
  • 02:26for example,
  • 02:27we have clinical social workers who provide
  • 02:31navigation services for our patients.
  • 02:33Help get them connected to
  • 02:35resources and their degree
  • 02:36is just not quite as long as a PhD,
  • 02:38so their degree usually runs between
  • 02:41around three years or so versus
  • 02:43I believe I wrapped up finally about
  • 02:45seven years in to my doctoral program.
  • 02:48And so when people also refer to counselors,
  • 02:52are those psychologists?
  • 02:55Are those social workers?
  • 02:57Is that a different group
  • 02:59of people altogether?
  • 03:00Or is that just a term that's used
  • 03:03interchangeably for people who
  • 03:04provide counseling services as
  • 03:06part of their scope of care?
  • 03:09It's generally used interchangeably with
  • 03:11psychotherapy or therapy counseling,
  • 03:14but there are folks that have a specific
  • 03:16degree and they're called licensed
  • 03:18Professional counselors and those
  • 03:20degrees tend to be around two to three
  • 03:22years as well before they can be licensed
  • 03:24independently to provide counseling.
  • 03:26But it seems to be that people use the term
  • 03:29counseling interchangeable with therapy.
  • 03:32And here at Yale Cancer Answers,
  • 03:35we're often talking about cancer
  • 03:37patients in their journey.
  • 03:39So talk a little bit about how
  • 03:43mental health, which seems to
  • 03:46be a really big topic right now,
  • 03:48kind of plays into the
  • 03:50cancer patients journey.
  • 03:51At the top of the show,
  • 03:52we kind of talked about
  • 03:55we were going to
  • 03:56talk about Psycho Oncology,
  • 03:58so maybe you can give us a
  • 04:00definition of what that is and
  • 04:02how mental health plays
  • 04:04into a cancer patients journey?
  • 04:06Sure, psycho Oncology is a subspecialty
  • 04:09of the field of health psychology,
  • 04:13which is applying biological, physiological,
  • 04:18social and psychological understanding
  • 04:20of disease to help understand how
  • 04:24people cope and also how we can use
  • 04:27understanding of those processes
  • 04:29to help people change behaviors.
  • 04:32For example, smoking cessation
  • 04:35or helping people adhere to screening
  • 04:38recommendations and psycho oncology
  • 04:40specifically is applying those behavioral
  • 04:44and social science ideas to the
  • 04:46challenges that cancer patients face,
  • 04:48specifically, which are many,
  • 04:50the treatments for cancer.
  • 04:52It can be so challenging in harsh
  • 04:55and taxing on the body that those
  • 04:57things can trigger some symptoms that
  • 05:00we would classify as mental health.
  • 05:02Or vice versa,
  • 05:03mental health symptoms could worsen
  • 05:05some of the challenges that come along
  • 05:08with cancer treatments alongside just
  • 05:10the general idea of of being diagnosed
  • 05:13with the Big C, such
  • 05:16a life threatening and scary disease,
  • 05:18which as you could imagine,
  • 05:20would make anybody feel fearful.
  • 05:22But the treatments also tend to
  • 05:25compound those things and make that
  • 05:27struggle a little bit more challenging.
  • 05:29And so psycho oncologists really
  • 05:31focus on helping patients
  • 05:33manage both the emotional and the
  • 05:35physical side of cancer treatments
  • 05:37and well into survivorship as well.
  • 05:39You know when you were talking,
  • 05:41it seemed to me that there's really different
  • 05:44groups of patients that I could see
  • 05:47your services being useful for,
  • 05:50so they're the patients
  • 05:53who are well who have not yet
  • 05:55been diagnosed with the big C,
  • 05:57but who may be at risk.
  • 05:59So when you were talking
  • 06:02about behavior modification,
  • 06:03smoking cessation we know that smoking
  • 06:05is a key driver of many cancers.
  • 06:08A patient may not have been
  • 06:10diagnosed with cancer yet
  • 06:12but your services would still be
  • 06:15helpful in helping patients to
  • 06:17quit smoking or other
  • 06:20lifestyle modifications.
  • 06:21We've talked on this show about obesity,
  • 06:24for example,
  • 06:25and getting people into the right
  • 06:28mindset to to adopt those healthy behaviors.
  • 06:32So that's one group of patients.
  • 06:33And then there's the cancer patients.
  • 06:35And then there's the survivors.
  • 06:36So in talking about these three
  • 06:38categories of patients, I guess,
  • 06:40can you dive a little bit more into
  • 06:43the strategies that you would use in
  • 06:46helping the first group of patients?
  • 06:48The patients who,
  • 06:49and I'm sure many of our listeners
  • 06:51right now are thinking,
  • 06:53especially with the new
  • 06:54year just around the corner,
  • 06:56I really ought to develop
  • 06:58some healthier habits.
  • 06:59I know that these habits that I currently
  • 07:01have, over eating, not exercising,
  • 07:04smoking, drinking,
  • 07:04and so on and so forth increase
  • 07:07my risk of cancer.
  • 07:08But how can I
  • 07:12help myself to set some resolutions
  • 07:15and behavior modification that can help?
  • 07:18Can you give people some tips and
  • 07:20also tell us when they should
  • 07:22start seeking out professional
  • 07:24help to make those behavior
  • 07:27lifestyle modifications?
  • 07:29We are lucky in that we have
  • 07:31a very robust tool in our tool belt
  • 07:35called cognitive behavioral therapy
  • 07:36which some may have heard of that is
  • 07:39really considered the gold standard in
  • 07:42managing depression and anxiety symptoms,
  • 07:45but has been more studied in recent years
  • 07:48on how we can use CBT to help manage
  • 07:51both those behavioral changes you're
  • 07:54mentioning as well as emotional issues
  • 07:57moving forward. Whether
  • 07:59you're talking about a cancer patient
  • 08:01or someone who just wants to make
  • 08:03some changes because behavior is not
  • 08:05something that exists in isolation.
  • 08:08Behavior also exists in response
  • 08:10to how we think about things and
  • 08:13how we feel about things and so
  • 08:15CBT focuses on the relationship
  • 08:18between our thoughts, our behaviors,
  • 08:21our emotions, and more recently,
  • 08:23research has focused on the
  • 08:25physical sensations as well.
  • 08:27An example,
  • 08:28maybe if you're feeling anxious,
  • 08:30people tend to have changes in their body.
  • 08:33Their heart may race.
  • 08:34They may have difficulty
  • 08:36with hyperventilation,
  • 08:37which is something that
  • 08:38when it's intense enough,
  • 08:40could actually bring someone to the
  • 08:42emergency room because they think that
  • 08:44they may be having a heart attack and
  • 08:46so CBT looks at those four components,
  • 08:48and prioritizes which of these things
  • 08:50seems to be the biggest barrier for making
  • 08:54the changes that you want to change.
  • 08:57So one thing that I notice a lot in practice
  • 09:00when folks want to make some
  • 09:02kind of behavior change as they
  • 09:03tend to go really big at first,
  • 09:05and then they inevitably end up not
  • 09:08getting where they want to go because
  • 09:11they may have set those goals too
  • 09:13high in the beginning instead of
  • 09:15maybe starting slow and just
  • 09:17taking some time to reach their goal.
  • 09:20And you could imagine if you've
  • 09:22done that over and over again,
  • 09:24you may start to have thoughts like Oh well,
  • 09:26what's the point? Why even bother?
  • 09:27I can't do this,
  • 09:28and then you may throw in the towel.
  • 09:30And so when you're
  • 09:32meeting with someone like myself,
  • 09:35to focus on those issues,
  • 09:37we want to know what has been
  • 09:39difficult about getting to the place
  • 09:40where you want to go in the past.
  • 09:42And usually it follows in one of those
  • 09:44categories of thoughts, behaviors,
  • 09:46emotions or physical sensations.
  • 09:49And I would suggest for someone if
  • 09:51they're thinking about whether or not
  • 09:53they need to work with a professional,
  • 09:55is how successful have you
  • 09:57been in the past,
  • 09:58and are you able to identify where
  • 10:00you might have gotten off the
  • 10:02path of where you wanted to go?
  • 10:04And if you're not sure, if it feels
  • 10:05like you need someone to help work
  • 10:07with you to set some clear goals
  • 10:09and have some accountability and
  • 10:11work with you on building momentum,
  • 10:12then that might be a time to reach
  • 10:14out to a professional for some help.
  • 10:17And so in order to do that,
  • 10:20how do people access
  • 10:22Psychological services?
  • 10:23Do they go through their family doctor
  • 10:25or do people come to you just straight
  • 10:28off the street and say, you know,
  • 10:30I'm interested in
  • 10:33quitting smoking.
  • 10:34I'm interested in losing weight.
  • 10:36How do people generally find
  • 10:39psychologists and psychiatrists
  • 10:40and counselors and social workers
  • 10:43to help them with these with
  • 10:45these behavioral modifications?
  • 10:46If they haven't been diagnosed
  • 10:48with cancer yet?
  • 10:50There are a lot of different avenues for
  • 10:52that, but oftentimes people may find
  • 10:54a provider through their insurance,
  • 10:56as insurance will list what services
  • 10:58are covered and who are the
  • 11:00providers that take your insurance.
  • 11:02People also find me through word of mouth,
  • 11:04so they might have a friend or a family
  • 11:07member who had spoken to me at one point,
  • 11:08or they may have heard me speak at a
  • 11:11group and people can also search different
  • 11:15websites that host different
  • 11:18platforms for finding a provider.
  • 11:20For someone like myself,
  • 11:22I'm a board certified clinical
  • 11:24health psychologist,
  • 11:25so I have a specialty in health and
  • 11:27you can search specifically for that.
  • 11:29A board certified clinical health
  • 11:31psychologist through the American Board
  • 11:33of Professional Psychology to find
  • 11:35folks in your state that have that
  • 11:37designation and would likely be more
  • 11:39able to help in the realm of health change.
  • 11:43Great information, all right.
  • 11:45Let's look at the second category
  • 11:49so the newly diagnosed cancer
  • 11:51patient, you can imagine,
  • 11:54when you've
  • 11:55been given that diagnosis,
  • 11:57your world kind of turns upside down,
  • 11:59and it's not uncommon for people
  • 12:03to a have anxiety, but
  • 12:06it may also turn into,
  • 12:10you know, depression.
  • 12:11Some people may turn to substance abuse.
  • 12:15They may have issues in terms of
  • 12:18relationships, especially because
  • 12:19it's not just the patient
  • 12:21going through that diagnosis,
  • 12:23it also affects family,
  • 12:25workplaces, and so on and so forth.
  • 12:28How do you manage dealing with
  • 12:31all of that when patients are
  • 12:34newly diagnosed with cancer?
  • 12:37It is a lot, and if you think about it,
  • 12:39it really does affect almost
  • 12:41every aspect of someone's life.
  • 12:43Maybe not everyone all of the time,
  • 12:45but even things like work.
  • 12:47If somebody is so sick that they
  • 12:48can't make it to work anymore,
  • 12:50then they might start having
  • 12:52financial problems.
  • 12:52Maybe they can't perform the same
  • 12:54roles that they did in their
  • 12:56household and that might lead to
  • 12:58some relationship conflict.
  • 13:00Not to mention the physiological aspects
  • 13:02of the cancer treatment itself.
  • 13:04So there are a lot of different
  • 13:06ways folks can struggle through this
  • 13:10process and I keep coming
  • 13:12back to CBT because it's just such
  • 13:13a handy tool because it's such a
  • 13:15big umbrella and there's so many
  • 13:16different things that we can do with that.
  • 13:19But again,
  • 13:20we can breakdown what are the challenges?
  • 13:22Are they controllable or uncontrollable?
  • 13:25If they're controllable,
  • 13:25we might problem solve or help
  • 13:27resolve some of the barriers and that
  • 13:29way of looking at what are concrete
  • 13:31steps that someone could take,
  • 13:32or if it's uncontrollable then
  • 13:34we look at managing the emotion
  • 13:36and maybe helping choose
  • 13:37coping strategies that are more
  • 13:39helpful. Things like substance abuse,
  • 13:41those kinds of things tend to help
  • 13:42really well in the short term,
  • 13:44and that's why people do them.
  • 13:45But they're not the best for long
  • 13:47term coping or for long term health,
  • 13:49and so we can help someone
  • 13:50get the big picture of
  • 13:52what are the biggest issues and
  • 13:54prioritizing the ones that are
  • 13:56most important.
  • 13:57Starting with that controllable,
  • 13:59uncontrollable framework and then
  • 14:01using the tools that CBT provides
  • 14:03us to help get more specific.
  • 14:05We'll talk a lot more about what
  • 14:07things people can do from
  • 14:09a practical standpoint,
  • 14:10right after we take a short
  • 14:12break for a medical minute.
  • 14:13Please stay tuned to learn more
  • 14:15about The Field of Psycho-Oncology with my
  • 14:17guest doctor Jennifer Kilkus.
  • 14:19Funding for Yale Cancer Answers
  • 14:21comes from Smilow Cancer Hospital,
  • 14:23where physicians collaborate with
  • 14:25diagnostic and interventional
  • 14:27radiologists, gastroenterologists,
  • 14:28and pathologists to provide expert care
  • 14:31for patients with pancreatic cancer.
  • 14:36yalecancercenter.org/GI.
  • 14:39Breast cancer is one of the most common cancers
  • 14:41in women. In Connecticut alone,
  • 14:43approximately 3500 women will be
  • 14:45diagnosed with breast cancer this year,
  • 14:48but there is hope,
  • 14:49thanks to earlier detection,
  • 14:50noninvasive treatments and the
  • 14:52development of novel therapies
  • 14:54to fight breast cancer.
  • 14:55Women should schedule a baseline
  • 14:57mammogram beginning at age 40 or
  • 14:59earlier if they have risk factors
  • 15:01associated with the disease.
  • 15:03With screening, early detection,
  • 15:05and a healthy lifestyle,
  • 15:06breast cancer can be defeated.
  • 15:09Clinical trials are currently
  • 15:11underway at federally designated
  • 15:13Comprehensive cancer centers such
  • 15:14as Yale Cancer Center and at Smilow
  • 15:16Cancer Hospital to make innovative
  • 15:19new treatments available to patients.
  • 15:21Digital breast tomosynthesis or 3D
  • 15:23mammography is also transforming breast
  • 15:26cancer screening by significantly
  • 15:28reducing unnecessary procedures
  • 15:30while picking up more cancers.
  • 15:32More information is available at
  • 15:35yalecancercenter.org. You're listening
  • 15:36to Connecticut Public Radio.
  • 15:39Welcome back to Yale Cancer Answers.
  • 15:42This is doctor Anees Chagpar
  • 15:44and I'm joined tonight by my
  • 15:45guest Doctor Jennifer Kilkus.
  • 15:47We're learning about her work
  • 15:48in the field of Psycho oncology
  • 15:50and right before the break
  • 15:52Jennifer, you were telling us about
  • 15:54the role that Psycho oncology
  • 15:56can play for a cancer patient whose
  • 15:59world may have been just shattered with a
  • 16:01new diagnosis who may be facing anxiety,
  • 16:04who may be facing issues of
  • 16:07depression or substance abuse,
  • 16:08who may have issues in their work,
  • 16:10in their relationships,
  • 16:13and I'm just wondering a few things.
  • 16:15So first of all, does every patient,
  • 16:18every cancer patient,
  • 16:19need a Psycho oncologist?
  • 16:21Is that something that they should be
  • 16:23talking to their oncologist about?
  • 16:24Or is it only the patients who are
  • 16:27really struggling with that diagnosis
  • 16:29that should be asking for that service?
  • 16:32I would say that no,
  • 16:34it's actually surprising that many
  • 16:36cancer patients are able to cope just
  • 16:38fine with the resources that they
  • 16:40have available in their community.
  • 16:42So they might have a really
  • 16:44strong social support network,
  • 16:45or they may already have a provider in
  • 16:50the community and we estimate somewhere
  • 16:53around 30 to 40% of patients may
  • 16:56meet criteria for a major depressive
  • 16:58disorder and anxiety disorder at some
  • 17:00point throughout their diagnosis
  • 17:02and their treatment,
  • 17:03depending on which measures we're using
  • 17:05and which researcher we're asking.
  • 17:06But for the most part,
  • 17:08many patients tend to cope very well
  • 17:11despite how challenging this can be.
  • 17:13So I would say for patients who
  • 17:16really feel like these symptoms are
  • 17:18persisting and they're really finding
  • 17:20it hard to get by with their day-to-day
  • 17:23activities because of their symptoms,
  • 17:25that would be a good time to talk
  • 17:27to your oncologist about connecting
  • 17:28with someone for some help.
  • 17:30The other thing that strikes me
  • 17:32is that very much like we've seen
  • 17:35with mental health in general,
  • 17:38it seems to be something that a lot
  • 17:40of people don't want to talk about.
  • 17:41They don't want to admit they oftentimes
  • 17:44feel like they may be perceived
  • 17:47as being quote weak if they admit
  • 17:50that they're struggling to cope.
  • 17:53And how do you get over that?
  • 17:55What advice do you have for people to
  • 17:58broach that subject with their physician
  • 18:00so that they can start getting some help?
  • 18:03I am so glad that you brought that up
  • 18:05because if I had a number one soapbox issue,
  • 18:08it would be the messaging that we get not
  • 18:10just with cancer but in our culture as a
  • 18:13whole about those narratives of having
  • 18:15to be strong and struggle through things.
  • 18:17And those types of narratives really
  • 18:20make it difficult for people to
  • 18:22acknowledge that they may be struggling
  • 18:25and reach out for help,
  • 18:26because the message that they get everywhere
  • 18:29that they look at is that is somehow wrong,
  • 18:31or that you're failing in some way.
  • 18:33But the reality is,
  • 18:35that most people struggle with this,
  • 18:38and that's what's more normal.
  • 18:39It's more normal to struggle
  • 18:41and to have difficulty with
  • 18:43challenging situations in our lives,
  • 18:45and we don't often give people an
  • 18:48opportunity to have that witness.
  • 18:50And so if there are folks listening
  • 18:52who have struggled with that,
  • 18:54I would just encourage you to
  • 18:58question where that came from,
  • 19:00and if you would have the same
  • 19:02types of expectations
  • 19:04if somebody that you cared about in your
  • 19:05life thought that.
  • 19:07Because oftentimes
  • 19:09we're very hard on ourselves in a way
  • 19:11that we wouldn't be for other people,
  • 19:13and I think that of course,
  • 19:16as a psychologist,
  • 19:16this is easy for me to say,
  • 19:18but I think that asking for help is
  • 19:20the biggest sign of strength because
  • 19:22you're acknowledging that this is
  • 19:24something that you can't manage on your own,
  • 19:26and that's risky.
  • 19:27It's vulnerable,
  • 19:28and so it's possible to feel that
  • 19:31and still ask for help.
  • 19:33It's possible to
  • 19:34push through that and in speaking
  • 19:36with an oncologist,
  • 19:37all of them have seen people struggling
  • 19:39at different points of their diagnosis.
  • 19:43And so it's not a surprise if you do
  • 19:46even just a little bit of research,
  • 19:48if you just Google,
  • 19:49say cancer and anxiety or cancer and stress,
  • 19:52you'll see how common it is and
  • 19:54how common it is to ask for help
  • 19:56and how many different avenues
  • 19:57there may be out there for support.
  • 20:00I think that one key message for
  • 20:03people whether you've been diagnosed with
  • 20:06cancer or not is that it's OK to not be OK.
  • 20:09And it's OK to say I'm not OK and I
  • 20:12could really use some help and the
  • 20:15good news is that help is out there,
  • 20:19but sometimes that help needs to be asked
  • 20:22for because people don't have ESP, right?
  • 20:24So you need to kind of take that
  • 20:27step and I agree with you, it's a
  • 20:29vulnerable step, right?
  • 20:30But it's OK to say I'm not OK,
  • 20:34and I think more and more people
  • 20:36now are realizing that,
  • 20:38and so I hope that that message gets across.
  • 20:42But the other thing I think that is
  • 20:46really helpful is for people to understand
  • 20:49in a practical and pragmatic way,
  • 20:51what is the benefit of seeing
  • 20:54a mental health provider,
  • 20:55whether it's a psychologist, a psychiatrist,
  • 20:58a counselor or social worker,.
  • 20:59Can you provide us
  • 21:02some tangible benefits that you get
  • 21:04because some people may be thinking OK,
  • 21:07what are
  • 21:08they gonna do?
  • 21:10I mean,
  • 21:10we're going to talk about my
  • 21:11childhood or something,
  • 21:13and I think that there's a lot of
  • 21:16misperceptions about what exactly you
  • 21:18do and what are the tangible benefits
  • 21:21of working with a counselor or mental
  • 21:24health professional to kind of cope
  • 21:27with either the physical symptoms
  • 21:29or the psychological symptoms.
  • 21:32Or simply to get through the day
  • 21:34and cope with all of the peripheral
  • 21:36things that are happening with you
  • 21:39in terms of relationships at home,
  • 21:41at work, and so on.
  • 21:44And I've heard all
  • 21:45of those things and more when I
  • 21:47meet someone for the first time,
  • 21:49so they have gotten over that hump of OK,
  • 21:52I'm going to make an appointment.
  • 21:53I'm going to go to the appointment,
  • 21:54but what do we do now?
  • 21:56There is a lot of misinformation and
  • 21:59misunderstanding about what psychologists
  • 22:01and counselors and social workers do.
  • 22:03There are some that focus on understanding
  • 22:06how your childhood shaped who you are today.
  • 22:08When we're dealing with something like cancer
  • 22:11and something that's very here and now,
  • 22:13we're focused on what tools are the most
  • 22:16useful for helping improve your symptoms
  • 22:18and helping improve your quality of life.
  • 22:21And so to use an example that I see often,
  • 22:24fatigue is one of the biggest challenges
  • 22:27that cancer patients experience as they're
  • 22:29going through their treatment and well
  • 22:32beyond when their treatment is completed
  • 22:34and if we're using looking at how CBT
  • 22:37skills vary based and a present moment
  • 22:39focused approach could help with that.
  • 22:42I would work with someone on
  • 22:45identifying what behaviors might be
  • 22:47continuing that cycle of fatigue,
  • 22:49and oftentimes with fatigue comes
  • 22:50depression and when we feel
  • 22:52depressed or when we feel like we
  • 22:54can't do the things we used to do,
  • 22:56a lot of people tend
  • 22:57to withdraw and so they may struggle
  • 22:59to do the activities that used to bring
  • 23:02them pleasure or feel meaningful to them,
  • 23:04or they may be spending a lot of
  • 23:06time in bed or on the couch and those
  • 23:09things unfortunately tend to make
  • 23:10both fatigue and depression worse.
  • 23:12So we might focus on how can we gradually
  • 23:16increase activity overtime and in a way
  • 23:19that balances both energy and mood.
  • 23:22So paying attention to what things
  • 23:24have the biggest bang for the buck
  • 23:26for improving mood and energy.
  • 23:28And building up slowly over time
  • 23:29again so we don't get into a cycle
  • 23:31where we're doing too much
  • 23:32and then the bottom drops out and and we
  • 23:35just give up because it's too difficult.
  • 23:38And so you can see how
  • 23:41in that scenario,
  • 23:42I'm not providing advice.
  • 23:43I'm also not talking about anybody's
  • 23:45childhood.
  • 23:46I'm suggesting skills and strategies
  • 23:48that are focused on the problem at hand.
  • 23:51And what could actually be done
  • 23:53to help improve things overtime.
  • 23:56Yeah, I think that's
  • 23:57so important.
  • 23:59And it really is, you know,
  • 24:00kind of tangible advice like guidance.
  • 24:03Just like a coach.
  • 24:05You know when you're a kid and
  • 24:07you're playing Little League or
  • 24:09or you're learning the piano.
  • 24:11You always have a teacher or a
  • 24:13coach who's trying to make you
  • 24:14better and and give you those tips.
  • 24:16Those skills that will help
  • 24:18you in improving whatever it
  • 24:20is you're trying to improve.
  • 24:22And I think working with a mental
  • 24:26health professional in that way may
  • 24:29provide you those same kinds of skill
  • 24:31sets that will help you to overcome
  • 24:34the challenges that come with that.
  • 24:37I think the other piece though is
  • 24:40the emotional piece and you know,
  • 24:42dealing with just the huge array of emotions
  • 24:46that you get with a cancer diagnosis.
  • 24:49And for some people I think that so
  • 24:52much can compound one thing on top of
  • 24:55another thing on top of another thing.
  • 24:58And there are cases where
  • 25:01people can actually get
  • 25:04suicidal with all of the things
  • 25:07building up leading to outcomes
  • 25:09that really didn't need to happen.
  • 25:12So talk a little bit about how people
  • 25:15can overcome some of the emotional
  • 25:17baggage and all of the things that
  • 25:20just seem to layer on when they're
  • 25:23going through a cancer journey where
  • 25:26you know sometimes it just feels like
  • 25:29there's a tiny straw that can
  • 25:31break the camels back.
  • 25:33And I think that's
  • 25:34exactly what happens,
  • 25:35and I often talk to people about
  • 25:38that these aren't as if we were
  • 25:40dealing with each stressor individually.
  • 25:42They do become something different
  • 25:44when they compound like that and
  • 25:46and they become something bigger
  • 25:47and more more difficult to manage,
  • 25:49but I think the strategy is the
  • 25:51same as teasing apart all those
  • 25:53different pieces that are tangled up
  • 25:55and looking at them one by one and
  • 25:57how they interact with each other.
  • 25:59And so it may be that someone,
  • 26:02like the example that I mentioned,
  • 26:04comes with more behaviorally
  • 26:07motivated symptoms where they're
  • 26:09having a hard time connecting
  • 26:11with people or they've withdrawn,
  • 26:13and it may be that somebody is coming
  • 26:15to me with more symptoms that are more
  • 26:17driven by the thoughts that they have like,
  • 26:19this is hopeless,
  • 26:20or I'm never going to get past this,
  • 26:23and so we would just take those pieces one
  • 26:25at a time and address them as they come,
  • 26:28and oftentimes they have a downstream effect.
  • 26:31So once you can start
  • 26:32getting some distance from
  • 26:34thoughts and thinking about them in
  • 26:36a more objective or balanced way,
  • 26:38then it may become easier to do some
  • 26:40of the things behaviorally that might
  • 26:42also help you feel better and vice versa.
  • 26:45And so it's not
  • 26:47I wouldn't say a simple process or
  • 26:49or maybe it is a simple process,
  • 26:51but not an easy one,
  • 26:53but that's why it's helpful
  • 26:55to have someone like a coach.
  • 26:56And that's why I often think of
  • 26:58myself like a coach or like a teacher
  • 27:00to help observe those things.
  • 27:02And help point out where can we start
  • 27:04so that we can have the most success
  • 27:07the quickest and then go from there.
  • 27:10I think that that's so key, is
  • 27:13that oftentimes when you're feeling
  • 27:14overwhelmed like it's just one thing
  • 27:16on top of another thing on top of
  • 27:19another thing on top of another thing,
  • 27:21it's sometimes helpful to have an
  • 27:24objective lens and outside person
  • 27:26to kind of break things down for you
  • 27:29into little pieces and to give you
  • 27:32some skills to understand how you can
  • 27:34deal with each of the little pieces.
  • 27:37It might be more manageable
  • 27:39than trying to deal with
  • 27:40the overwhelm of many things
  • 27:43all compounded at once.
  • 27:45And actually if we look at what happens
  • 27:48physiologically and neurologically
  • 27:49when we become overwhelmed,
  • 27:51it's actually really difficult to
  • 27:53do that for ourselves because our
  • 27:55frontal lobe is really what helps
  • 27:57us think through things clearly and
  • 27:59problem solve and to sort through
  • 28:02things and organize for ourselves.
  • 28:04And when we're feeling very emotional,
  • 28:06that part of our brain isn't
  • 28:08activated as much. Instead,
  • 28:09the part of our brain,
  • 28:11our amygdala, is really on
  • 28:13overdrive in our sympathetic nervous system.
  • 28:16That's our fight or flight response.
  • 28:17That's what our body does when
  • 28:19we're in danger.
  • 28:20When it thinks we're in danger, it
  • 28:22really takes over,
  • 28:23and it becomes very challenging
  • 28:24to think clearly,
  • 28:25and that's part of the reason why
  • 28:27it's so helpful to have someone
  • 28:29outside to be able to objectively
  • 28:30help guide you through those things.
  • 28:33Doctor Jennifer Kilkus is an
  • 28:34assistant professor of psychiatry
  • 28:36at the Yale School of Medicine.
  • 28:38If you have questions,
  • 28:40the address is cancer answers at
  • 28:42Yale.edu and past editions of the
  • 28:44program are available in audio and
  • 28:47written form at yalecancercenter.org.
  • 28:48We hope you'll join us next week to
  • 28:51learn more about the fight against
  • 28:53cancer here on Connecticut Public Radio.
  • 28:54Funding for Yale Cancer
  • 28:56Answers is provided by Smilow
  • 28:57Cancer Hospital and AstraZeneca.